NEWS
WORLD KIDNEY DAY 2019
This year’s World Kidney Day is on Thursday 14 March. The theme is “Kidney health for everyone, everywhere” and the day is supported by all the leading kidney charities, including NKF and SAKA.
To mark the occasion SAKA is joining forces with the Sheffield Hospitals Charity and the University of Sheffield to hold a photo exhibition in the Winter Garden in Sheffield city centre from Monday 11 March to Friday 15 March. This will include kidney stories from individuals, both from here and from around the world. We are looking for interesting stories we can share, and if you would like to be considered to be featured please get in touch. We will need a good quality photograph of yourself (or we can arrange to have a photograph taken) and a few details about your kidney journey. Have you had a transplant, perhaps from a family member or a friend? You could describe how this came about and what difference it has made to your life. Have you ever dialysed away from home, or even in another country? You could write a few words about your experience. You will all have your own stories to tell. If you would like to take part please contact:
We are also looking for volunteers to come into the Winter Garden for an hour or so during the week to look after the exhibition and talk to members of the public. Again, please get in touch if you could help at all.
SHEFFIELD CELEBRATES 50 YEARS OF KIDNEY TRANSPLANTATION
On 28 September a celebration was held at Kenwood Hall to mark 50 years of kidney transplantation in Sheffield.
PITHIA Trial
The PITHIA trial is a new clinical trial being rolled out across all transplant centres in the UK. The aim is to allow doctors to perform higher numbers of good quality transplants using kidneys from older donors.
2019 RENAL NURSE OF THE YEAR AWARD
This is your chance to nominate the nurse from your unit who goes above and beyond, putting patient care at the heart of their role.
Click here for details
3rd PKD Patient Research
Information Day
The 3rd PKD Patient Research Information Day was held on Saturday,14th July 2018 at The Circle, Rockingham Lane, Sheffield.
The event was chaired by nephrologist Prof. Albert Ong and was attended by nearly forty patients and guests.
Patients at the event were given presentations from experts on new research trials, patient experience of new treatments, managing pain and improvement of imaging techniques.
There were also opportunities to view posters from recent research studies, question the experts and to mingle and share experiences with each other.
The feedback from the day was very positive and there are plans for similar events in the future.
“An excellent informative day, thank you”
“Very useful”
“I am reasonably new to PKD but am very impressed and appreciative of the care and concern (and friendliness) of the Sheffield Team, thank you”
“This event is invaluable to me as a patient. It is so helpful to hear the advances in research as it helps me to feel more positive, empowered and knowledgeable about the disease”
For further information email: j.winterbottom@sheffield.ac.uk
LONDON to PARIS CYCLE RIDE
David Marshall, Chairman of SAKA, arrived in Paris on the afternoon of Saturday 28 July, having cycled all the way from London under the most trying of conditions. For much of the time the temperature was in excess of 35 degrees C, and one full day was above 40 degrees. On top of that, his bike suffered from mechanical issues on two occasions, meaning that he had to eventually abandon it and complete the ride on a borrowed bike which was much heavier to pedal.
All this was done on behalf of all renal patients, to raise funds for the National Kidney Fedearion and to raise awareness about organ donation and transplantation.
To help in David's fundraising, and to recognise his achievement, Click here.
FREE Information and Advice Sessions
SAKA is funding Information and Advice Sessions at the Renal Unit at the Northern General Hospital. Any renal patient can make use of this service, which covers benefits advice, housing issues, consumer issues, non-residential care, money matters, legal issues.
The sessions take place every Tuesday starting on 26 February and are for anyone with kidney related conditions.
For further details or to book an appointment:
Phone 0114 2502850 or
email: enquiries@ageuksheffield.org.uk
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HELP NEEDED WITH RESEARCH PROJECT
We have been contacted by a Research Fellow asking for help. See below.
I am a Research Fellow at Cardiff University, working in the Cedar Health Technology Research Centre. Cedar has been commissioned by NICE to conduct research on the use of bioimpedance to help determine dry/target weight for patients having dialysis. This follows on from the recently published NICE guidance on bioimpedance for fluid management in dialysis.
Cedar are working in collaboration with another NICE-commissioned centre, KiTEC (King’s Technology Evaluation Centre). KiTEC are looking at the use of these medical devices in adult patients having peritoneal dialysis, whereas Cedar are assessing the feasibility of conducting similar research in paediatric patients having any type of dialysis.
We would like to find appropriate people to represent the views of patients in the design and management of these research projects
Specifically we are seeking:
· Cedar – parents of children with chronic renal disease who are receiving any type of dialysis, and/or young adults who have received dialysis as a child
· KiTEC – adults with chronic renal disease who are receiving peritoneal dialysis, and/or have received dialysis recently.
If you think you could help, or would like more details please contact:
Dr.Sue Peirce ,
Email susan.peirce@wales.nhs.uk
WORLD KIDNEY DAY 2018
SAKA took a stall to the World Kidney Day event at the Central United Reformed Church on 8 March.
Here is SAKA Treasurer, Phil, with the Lord Mayor of Sheffield, Councillor Annie Murphy who is herself a kidney patient.
Have your say on organ and tissue donation
(Consultation now closed)
The Department of Health received over 17,000 responses to their consultation about organ and tissue donation. The government intends to change the organ donation system to an 'opt-out' system. This means people would be considered willing to be an organ donor after their death, unless they had ‘opted out’.
Look out for further news later in the year.
GOLF DAY
The first annual SAKA charity golf tournament held on Monday 30 October at Hillsborough Golf Club was a great success. Ten teams took part in the autumn sunshine and everyone enjoyed the day which raised over £870.
Thanks must go to the Golf Club, all the players who took part, the people who donated raffle prizes and especially to the event organiser, David Lilley.
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