SAKA

SAKA is here for you. We help all kidney patients covered by the Sheffield Kidney Institute, along with families and friends.

 

Feel free to contact us for further information, to make any suggestions for what we could do for kidney patients or if you need any help.

 

Email:

contact@saka.org.uk

 

Phone SAKA Secretary:

07719 787885

SAKA Facebook Group

 

Patients (and family members, friends, carers etc) who attend the Sheffield Kidney Unit or its satellites are invited to join this small confidential Facebook Group to share news and information.

Click the link below to visit/join:

https://www.facebook.com/groups/sakasheffield

NEWS

 

 

Introducing Kidney Care UK’s FREE online PIP Helper

 

PIP is a benefit support awarded by the Department for Work and Pensions (DWP) to people who are eligible, to help them with living costs, but applying for it can be a confusing and long process. Kidney Care UK have launched a new online helper to guide you through :

The Kidney Care UK PIP Helper | Kidney Care UK

 

Patients as Educators

 

Could you help medical students to learn from real patients ?

The Clinical Skills Centre of the Sheffield University Medical School helps to train would-be medics of various sorts by introducing them to real patients with a variety of conditions. It is valuable to the students to be able to talk to patients and carry out relavent physical examinations. Many participants in the scheme feel that this is an easy way of 'giving something back'.

They would particularly welcome more kidney patients. 

For more details visit the website:

 Patients as Educators | Medicine and Population Health | The University of Sheffield

Guidance on Shingles Vaccination

 

All those eligible should be offered the non-live vaccine Shingrix as part of the UK shingles vaccination programme which aims to protect those individuals most at risk from shingles and its complications.

The British Transplant Society and UK Kidney Association have produced guidelines on the shingles vaccination.

Click here for details.

 

 

 

 

World Kidney Day is a global campaign aimed at raising awareness of the importance of our kidneys.

The aim is to raise awareness of the importance of our kidneys to our overall health and to reduce the frequency and impact of kidney disease and its associated health problems worldwide.

 

Click here to follow the campaign on Facebook in preparation for 14 March 2024

 

Kidney Beam is now fully funded for kidney patients in all parts of England.

 This is an online service helping kidney patients take care of their physical and mental health. It offers you a way to improve your physical activity in your own home.

 

Click below for full details about the service and how to sign up

Kidney Beam | National Kidney Federation

 

In September 2023 two experienced consultant nephrologists from University Hospitals Coventry and Warwickshire set up a new website for CKD patients and their families. It contains a wealth of information on how kidneys work, treatments for kidney disease etc. and is well worth looking at.

 

About - Chronic Kidney Disease Explained (ckdexplained.co.uk)

 

 

"My New Kidney" book for children

 

SAKA gave a grant to Kidney Research UK to help fund the publication of a book to be given to children awaiting kidney transplants.The playful, interactive books show what to expect in the lead up to and after their operation using a fun approach to alleviate anxiety. They are designed to encourage the recipients to colour, comment, write questions, draw and stick things in – creating important engagement so families can explore the transplant process together.

SAKA Chair, David Marshall, went to Nottingham to the handover of the books to the renal team and one of the specialists said:

 

‘The moment I saw the format of the My New Kidney book I knew it was exactly what we needed as a team in order to support our children and young people when embarking on the prospect of having a kidney transplant. The fun, child focused, and interactive format is just perfect. More importantly this will be a great tool for parents to use with their children’.

 

 

NHS App

 

You can download the NHS App or open the NHS website to access a range of NHS services, including your GP health records.

 

For details about how to use these services visit this section of the NHS website:

 

About the NHS App - NHS (www.nhs.uk)

 

 

Charity Clothes Collection

 

You can now support Kidney Care UK by recycling your unwanted clothes and other items. The process is easy as they come to your door to collect your donations,

 

For details of how to use the free collection service visit:

 

icollectclothes l Donate Clothes to Kidney Care UK

NKF Home Dialysis Peer Support Service

 

 

Fresenius Medical Care have announced their support for the free support service offered by the NKF for anyone already on or considering home dialysis.

Patients can be matched with a peer supporter and have one to one chats about any aspect of home dialysis.

 

For more details visit the NKF Website:

Peer Support | National Kidney Federation

 

 

The Transplant Tour came to Sheffield on a very wet Wednesday on 20 September. The 500 mile cycle ride was organised to raise money for the Give A Kidney Charity and to raise awareness of kidney donation, especially non-directed (altruistic) donation.

The riders set out from Edinburgh on 17 September, and then called in at Transplant Centres at Newcastle and Leeds before reaching Sheffield, 

They were going on to Manchester and Birmingham before finishing in Oxford.

 

The welcome banner was made by the children at the Sunshine Day Nursery.

 

Click here to visit the Give A Kidney website for more details about their work.

 

 

 

The riders were greeted by well wishers, including medical staff and kidney donors and recipients.

A symbolic baton was handed from a kidney donor to a recipient.

 

 

The South Yorkshire Mayor, Oliver Coppard welcomed the cyclists and congratulated them on their tremendous effort.

Also on hand to join the welcome party was Ed Clancy, Olympic gold medallist in cycling, and now working as active travel Commissioner for South Yorkshire.

Fundraising News

Thank you to Richard "Gus" Gutteridge for raising the fantastic total of £540 for SAKA through his JustGiving Page set up to mark his 60th birthday.

 

If you would like to add to the total the page is still open:

 

Richard Gutteridge is fundraising for Sheffield Area Kidney Association (justgiving.com)

Patient Voice Group

 

The Yorkshire and Humber Kidney Network are setting up a regional patient voice group to make sure patients are involved in their work across the region. The Yorkshire & Humber Kidney Network supports all 6 renal units in the region (Bradford, Leeds, Doncaster, Sheffield, Hull and York)  and all of the associated satellite dialysis units. The network focuses bringing about improvement in the quality and equity of care across the region and there will be opportunities for patients to engage in shaping their work as the network continues to develop.   

 

If you  are interested in joining a patient voice group, which would be a mix of face to face and online meetings, could you please email Gillian.Dinsey@nhs.net  with your contacts details.

 

 

Video for Living Donors

 

Sheffield Teaching Hospitals have produced a video with advice for living kidney donors.

 

Click here to watch

Book a free counselling appointment with Kidney Care UK

Kidney Care UK have re-launched their free counselling service for renal patients, carers, families and loved ones.

 

For details click here:

Counselling and support service | Kidney Care UK

Fundraising News

 

 

Collections

 

A big thank you to Susan and Lee Ellis who have held collections amongst their neighbours and friends over the last year, raising over £500 for SAKA.

 

 

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Three Peaks Challange

 

 

 

Gary Hackett successfully completed the Three Peaks Challenge on 29 April and raised a magnificent £812 for SAKA. We would like to congratulate him on this achievement and to express our thanks for choosing to support SAKA.

If you would like to add to the total please visit his JustGiving Page:

 

Gary Hackett is fundraising for SAKA (justgiving.com)

 

The National Kidney Federation have partnered with ITN Business to produce ‘Understanding Kidney Health’, a news-style programme featuring clinicians, stories of patients, the loved ones who care for them, plus highlighting vital work being done by the National Kidney Federation.

 

For more details and to watch the programmes Click here.

 

 

Reimbursement of additional utility costs for home dialysis

 

Click here to visit the NKF Website for full details

 

The NKF alongside other kidney charities and professional bodies have been working with the UKKA Kidney Patient Safety Committee.

 

Together they have produced a toolkit to support reimbursement of additional utility costs for home dialysis.

 

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OBITUARIES

 

Anne Murphy

 

We were shocked and saddened to hear that Anne Murphy, a Sheffield City Councillor and former Lord Mayor, passed away unexpectedly on 23 December 2022.  She will be greatly missed by all the charities she supported, including SAKA. She was diagnosed with Type 1 diabetes at the age of seven, and this later led to a decline in her kidney function. After a short time on dialysis she was lucky to receive a pancreas and kidney transplant at Manchester Royal Infirmary. Her new pancreas continued to work but the kidney failed in 2015. Fortunately her brother stepped forward to donate one of his kidneys and she had a second successful transplant.

Anne never allowed her health problems to get in her way and was determined to live life to the full, both in her professional and personal life. She pursued a career as a hard working social worker. Wanting to serve her community, she was elected onto the City Council in 2014, and she was Lord Mayor of Sheffield in 2017 to 2018.  One of her fellow Councillors has described her as a “complete force of nature” and commented that the word “no” wasn’t in Anne’s vocabulary. 

 

 

Debbie Kerry

 

We were deeply saddened to hear of the passing of Debbie Kerry in November 2022. Debbie, along with her husband Paul was a long standing supporter of SAKA. Debbie had two kidney transplants, and was very active in the City Group in the days when they did lots of successful fundraising. She also took part in many Transplant Games, beginning at Newcastle in 1993, and won lots of medals over the years.

 

 

 

PKB: the new kidney care digital record

 

From January 2023 Patient View will be replace by Patient Knows Best. PKB is the leading provider of digital health records to the NHS.

If you don't already have a PKB account you need to sign up before the end of the year in order to be able to continue accessing your test results etc. The two systems have been running in parallel, but from January Patient View will no longer be updated.

All details about Patient Know Best can be found here: Renal - Patients Know Best

If you have any problems with this new system please discuss it with your renal care team.

 

There is also an article on the NKF website about the change over. You can read it here: 

PatientView Switch to Patients Know Best Information | National Kidney Federation

UK Renal Registry Report

 

The 24th UK Renal Registry Annual Report has been issued.This contains a wealth of data and statistics relating to chronic kidney disease.

 

Click here to visit the UK Kidney Association website where the reports can be found.

 

Click here for a summary of the report which analyses data up to the end of 2020 

 

TRIBUTE TO STAN NUTTALL

Together with his wife Jennie, Stan was a founding member of SAKA in 1975. His daughter Gillian had kidney failure and was on dialysis. Stan and Jennie together with Dr Margaret Platts the then Renal Physician decided that there was a need for a kidney patient’s organization to raise funds for research and as a support group for Kidney patients in Sheffield.

Stan was very involved with SAKA for many years and helped organize fairs in Endcliffe Park, A float for the Lord Mayor’s parade and also collecting aluminium waste for recycling. The latter was a very good money spinner as the price of aluminium was high. It entailed taking a van round one evening a month to SAKA members spread far and wide to collect the metal, which they in turn had collected from friends and neighbouts, taking the truck load to a local scrap merchant on a Saturday morning.

Stan also got involved in a case where SAKA took the Inland Revenue (as it was then) to the commissioners to claim VAT on a computer system bought by SAKA for the Renal Unit. Unfortunately they lost the case but as a result of that case the law was changed so that any items now bought by charities for sole use in medical research or treatment could be VAT free.

Stan spent many an evening with Jennie going around the area speaking and collecting donations , from Rotary Clubs, Working Men’s Clubs and Schools.

Sadly on 2nd April 2022 Stan passed away at the age of 88, he will be remembered by his family and friends as a fun and loving man who made the most of life and was always helping others.

 

 

 

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