SAKA ANNUAL GENERAL MEETING 2020 POSTPONED
We would normally hold our AGM at the end of September, but due to Covid restrictions we are unable to do so this year. We will keep members and supporters updated as and when we are able to make any new arrangements in line with Charity Commission guidelines.
SONG CKD SURVEY INVITATION
You are invited to participate in a new Delphi Survey to understand what outcomes are important to patients, caregivers, family members and health professionals for research (clinical trials) in people with chronic kidney disease. This will help to ensure that researchers include outcomes that are relevant and meaningful for making decisions.
The focus of the survey is on chronic kidney disease (not yet requiring dialysis or kidney transplant). Patients receiving dialysis or have received a kidney transplant are also welcome to participate and will be asked to reflect on your past experiences before needing dialysis or transplantation. The Delphi survey includes two rounds and each survey will take about 10 minutes to complete.
If you are patient, family member, health professional with an interest in chronic kidney disease and would like to have a say about what is important to you, please click:
Due to the ongoing Covid 19 pandemic we are unable to sell Christmas cards at Sorby this year.
We are selling cards by mail order.
Following the success of our social distance lanyards, many of you told us how confident
you felt going out from the comfort of your own home wearing them.
You then asked for face masks, we listened, and we are happy to announce that the NKF has a 100% cotton, machine-washable, double-layered, black face mask, giving you even more confidence as you venture outside.
You can pre-order yours for £1.50 on our website, or by calling our head office on 01909 544 999. For bulk orders of 50 or more, please contact Pete Revell on 01263 722 287.
HELP DURING CORONAVIRUS PANDEMIC
Locally there are several organisations offering help and support .
AGE UK Sheffield have been running a food delivery service for vulnerable people who are self isolating.
Phone: 0114 250 2850 or email firstname.lastname@example.org
Local Councils are also offering help and support and it is worth checking their websites for regular updates:
Sheffield City Council have a community response helpline for Sheffield residents with any queries related to coronavirus. This is open 8.45 a.m. to 4.45 p.m. Monday to Friday :
0114 273 4567
Rotherham Borough Council: Click here for website
Emergency helpline for immediate help: 01709 807319
Barnsley Metropolitan Borough Council: Click here for website
Chesterfield Borough Council: Click here for website
Kidney Research UK are asking people to take part in a questionnaire on the emotional impact of living with kidney disease.
There are 3 categories to choose from:
Participants will be asked about the emotional impact of living with their condition, the support they currently receive, the support they would like to receive, or the ways they support others with health conditions and the impact this has on them.
WORLD KIDNEY DAY 2020
To mark World Kidney Day, SAKA joined forces with Sheffield Hospitals Charity Trust to organise a Photography Exhibition at the Winter Garden in Sheffield, which ran for a whole week in March.
Paul Cocker took photographs of ten kidney patients and renal staff and these were displayed along with their personal stories.
We also had a range of information leaflets for the public to take.
DIALYSIS BIKES AT SHEFFIELD DIALYSIS UNIT
SAKA has purchased 2 specialist bikes for patients at Heeley to use whilst dialysing.
These bikes have great benefits for patients.
Haemodialysis patients generally spend 3-4 hours 3 or 4 times a week on dialysis. This equates to 4-6 weeks per year sitting or lying inactive whilst on dialysis. Physical inactivity can lead to poor physical performance, loss of bone strength, loss of appetite, muscle wasting, hypertension, fatigue and dependence. These complications are augmented in patients with kidney disease, which in itself can lead to muscle wasting and hypertension. As most haemodialysis patients spend a considerable amount of time travelling to and from and in a dialysis unit, they have less opportunity to exercise.
Exercise in the general population is associated with a number of benefits including:
There are further specific benefits noted in haemodialysis patients including:
Living Donor Event
19 November 2019
The Living Donor Coordinators organised a highly successful evening at Bramall Lane on 19 November to give patients considering a living donor transplant all the information they needed. They were able to listen to and meet recipients of kidneys along with their donors.
The evening included a pie and pea supper and there was the chance to put questions to health care professionals as well as to donors and recipients.
The SAKA Annual General Meeting was held on Monday 30 September 2019. Thank you to the loyal supporters who turned out on a wet evening.
We heard from Dr. Bisher Kawar, recently appointed as Clinical Director of Renal Services, who gave us an update on the Department. He explained that some of the dialysis facilities are due to be upgraded, and that they will be looking for patient input into ideas for future improvements.
Dr. Will MacKane spoke about an initiative called "Getting it Right First Time" (GIRFT), which compares best practice amongst renal departments throughout the country and enables units to help each other in delivering the best service possible to patients.
Mr. Steve Dilks from RPG Financial spoke about his management of the SAKA investments.
There followed the routine business, including a report on the National Kidney Federation.
SAKA Chair, David Marshall, spoke about the work of the charity and outlined our plans for the future, including changing our charitable status to become a CIO (Charitable Incorporated Organisation). This will extend the scope of what we are able to do for renal patients.
Phil Beattie, SAKA Treasurer, reported that the finances were in a healthy state and thanked everyone who had supported the charity over the year by regular and one off donations, including those who had chosen to remember loved ones in this way. He also thanked all volunteers who had helped sell Christmas cards and said a special thank you to Andrew Raftery for raising money through his talks to various groups around the city.
Officers and Committee Members were elected as follows:
Chair: David Marshall
Vice Chair: Ken Tupling
Secretary: Peter Joynson
Treasurer: Phil Beattie
Membership Secretary: Glynis Beattie
Committee Members: Adam Greenway, Darren Lath, Kerry Radford, Andrew Raftery
An Open Forum discussion highlighted discontent over the new appointment system. Instead of arranging your next appointment when leaving the Outpatients Deprtment you now have to wait to be contacted.
There were also questions on the supply of medications if and when Brexit happens.
FREE Information and Advice Sessions
SAKA is funding Information and Advice Sessions at the Renal Unit at the Northern General Hospital. Any renal patient can make use of this service, which covers benefits advice, housing issues, consumer issues, non-residential care, money matters, legal issues etc.
Sessions are also held at Heeley Satellite Unit.
The sessions are run on our behalf by Age UK, but are open to patients of any age.
So far we have had a lot of success in helping people claim benefits, which they may not otherwise have realised they were entitled to.
For further details or to book an appointment:
Phone 0114 2502850 or
As you may know SAKA used to own a holiday caravan on the east coast, but, due to its declining use, we took the decision to sell it.
However, the North East Kidney Patients Association now have a caravan for hire at Cayton Bay Holiday Park near Scarborough.
Details: 2 bedroom, 6 berth, wheelchair friendly, fully equipped , hire fee includes free entertainment passes
Dialysis is available at Scarborough Hospital (4 miles away) and Bridlington Dialysis Unit (6 miles away)
For more details / bookings please contact Victoria Harrison: email@example.com
Phone / text : 07985 781364
To download flyer with full details CLICK HERE
SAKA was delighted to be chosen as one of the charities to benefit from the 2019 Music in the Gardens. This is an annual event in Sheffield's Botanical Gardens organised by local Rotary Clubs. Six volunteers from SAKA sold programmes and held a bucket collection on the evening of Sunday 7 July when the crowd was entertained by Unite the Union Brass Band and Sheffield Philharmonic Orchestra, followed by a firework display. So far over £700 has been raised, with more to come later in the year.
SHEFFIELD CELEBRATES 50 YEARS OF KIDNEY TRANSPLANTATION
On 28 September 2018 a celebration was held at Kenwood Hall to mark 50 years of kidney transplantation in Sheffield.