NEWS

 

 

FEEDBACK ON WARD INFORMATION BOARDS

 

Sheffield Teaching Hospitals are asking people to fill in a questionnaire to give their opinions on the information boards at the entrances to wards. They want to make sure that the information given is useful to patients and visitors. If you have been an inpatient or a visitor please complete this survey, and please pass on the details to anyone else you know.

CLICK HERE TO ACCESS THE SURVEY

 

One of the questions asks which of three types of information board you prefer. Below are the three examples to choose from.

 

 

Example 1

example 2

example 3

Researchers at the University of Exeter are looking for family members, partners, or friends of people living with kidney conditions to participate in an interview. 

 

Interviews will ask you about your needs, experiences receiving support, and views about online emotional support programmes.  

 

The results of this project will be used to understand more about what it is like to be a family member, partner, or friend of someone living with a kidney condition, and to inform the development of an emotional support programme for others like you. 

 

Contact Chelsea at c.coumoundouros@exeter.ac.uk if you want to learn more. 

World Kidney Day 2022

To mark World Kidney Day SAKA joined forces with Sheffield Teaching Hospitals NHS Foundation Trust to hold an online event with presentations by a range of health care professionals. Click below to watch the video of this event.

 

Immunosuppressed patients can book

5th Jab (Spring Booster)

3 months after previous booster

 

  • The Government has published details of the Spring vaccine booster for those over 75, those living in care homes and those aged over 12 who are immunosuppressed. This will be a fifth dose for people who are immunosuppressed and is intended to boost protection, which may wane over time.

 

 

 

 

 

To book online visit:  Book or manage a coronavirus (COVID-19) vaccination - NHS (www.nhs.uk)

 

 

 

 

Coronavirus : Latest guidance for kidney patients

 

You can check on the latest updates via the Kidney Care website:

Coronavirus (Covid-19) guidance for people with kidney disease | Kidney Care UK

 

 

 

 

 

 

 

 

 

CLICK HERE FOR COVID 19 ADVICE FROM NKF

 

 

 

 

 

 

LOCAL INFORMATION

For up to date information on how and where to get tests in Sheffield visit the Sheffield City Council website:

Coronavirus - Testing and self-isolating (sheffield.gov.uk)

 

And for informtion about vaccinations:  Coronavirus - Getting vaccinated (sheffield.gov.uk)

 

 

 

To access the latest advice from the Government visit:

 Coronavirus (COVID-19): guidance and support - GOV.UK (www.gov.uk)

 

 

Dialysis Away From Base Survey

 

Travel for dialysis patients is a real challenge - arranging dialysis away from base can be daunting, difficult and time consuming. As a result, travel for most patients is very limited. As the government loosens Covid restrictions, most of the population will regain their freedom to roam. But for many dialysis patients, unless changes are made, there is a risk that life may continue to feel like a permanent lockdown.

Dialysis Away is working with the NHS and kidney patient organisations to develop solutions for improved freedom for all dialysis patients.

 

They would like to hear from patients about their experiences with arranging dialysis away from base and have launched a survey, which is very short and only takes a few minutes to complete. The survey findings will be used to ensure the attention of policy makers on dialysis patient freedom.

 

If you would like to take part in this survey, here is the link : https://tinyurl.com/Dialysis-Travel-Survey

 

For more details about Dialysis Away visit their website: https://dialysisaway.com

 

OBITUARIES

 

All at SAKA were deeply saddened to hear that two valued members of the kidney community had passed away in early December. May they both rest in peace.

 

John Powell

John served as a Trustee in the early days of SAKA as well as being active in NKF. 

 

 

Darren Lath

Darren was a transplant patient and a Trustee of SAKA. He was a popular and loyal member of the Sheffield Adult Transplant Games Team and competed regularly in the Games over several years. Many people will remember him as the person who organised bookings for the seaside caravans which SAKA used to own. He was first diagnosed with cancer a few months ago but then given the all clear.Tragically he was then diagnosed with another tumour and lost his battle after a short illness.

 

Kidney Beam

Kidney Beam is an online service helping kidney patients take care of their physical and mental health. It offers you a way to improve your physical activity in your own home, which is especially important right now when many of you might still be wary of attending classes in person.

The online platform is hosted by specialist kidney professionals - from renal physiotherapists to renal counsellors - from a number of different NHS trusts and backgrounds, as well as people living with kidney disease. Kidney Beam is aimed at anyone over 16, with any ability, any kidney condition, and at any stage of kidney disease.

Click here for more details and to sign up

 

An Addenbrooke’s trial is rolling out to hospitals across the UK to see if a drug used to treat tapeworm can give high-risk kidney patients extra protection against Covid-19. 

The PROTECT-V study has been running since February and now 40 more hospitals will join in to investigate whether niclosamide can reduce the number of people who become seriously ill or die.  If the trial is successful, it may pave the way for a new treatment to prevent or alleviate the impact of Covid-19 in people on dialysis, kidney transplant patients, and those with auto-immune diseases affecting the kidneys, such as vasculitis.

Kidney patients who would like to take part in PROTECT-V should speak to their nephrologist in their local centre . More information is available via https://www.camcovidtrials.net/trials/view,protectv_50.htm

Home Dialysis

 

The National Kidney Federation is running a national campaign to encourage dialysis patients to consider dialysing at home rather than in a hospital. During the Covid 19 pandemic statistics emerged to show that home dialysis patients were at a lower risk of contracting the virus.

 

To help people make the transition NKF have launched a Peer Support service which offers short term practical and emotional support. If you would like to be put in touch with someone who has experience of home dialysis and who can talk to you about the process and share experiences, do get in touch by calling the NKF helpline: 0800 169 09 36 (9 am. - 5 pm, Monday to Friday)

 

or email helpline@kidney.org.uk

 

 

For full details of the Home Dialysis Peer Support Service click here

New NICE Guidelines

 

NICE (National Institute for Health and Care Excellence) have published new guidelines for the care and treatment of patients with chronic kidney disease.

Click here for details.

 

A joint statement from professional, patient and research kidney organisations, including NKF, particularly welcomes the changes relating to measuring the kidney function of ethnic minorities.

Click here to see the joint statement.

Click here for an explanation of the rationale for the change.

 

UK Renal Registry Report

 

The 23rd UK Renal Registry Annual Report has been issued.This contains a wealth of data and statistics relating to chronic kidney disease.

 

Click below to download the report.

 

UK Renal Registry Report
23rd_UKRR_ANNUAL_REPORT.pdf
Adobe Acrobat document [4.7 MB]

 

Drive Through Blood Test Centre

The drive through blood testing facility has moved again (as from 5 July) and is now located at City Parkway, Parkway Avenue, Sheffield, S9 4WA.

(Use the turn off for the Pentagon car showroom)

 

 

Click here to see the leaflet

 

PUZZLE BOOKS

 

SAKA has purchased a supply of Puzzle Books to be given to dialysis patients.

We know it is beneficial to keep our brains active and these puzzles will help to pass your time during your dialysis sessions.

If you would like one and have not been offered a copy, please ask a member of staff.

 

We would welcome any feedback on these books, or if you have any other ideas or suggestions about what else we could do to help:

please email: contact@saka.org.uk

 

 

SHARING GP DATA

From 1 September 2021 GP Practices across the UK will begin sharing patient data. The original start date was to be 5 July, but this has now been postponed.

 

The new General Practice Data for Planning and Research (GPDPR) aims to reduce the burden on GP practices, allowing doctors and other staff to focus on patient care.

 

The NHS will share details about diagnoses, symptoms, medications, immunisations as well as your gender and ethnicity. They will not share your name and address or any written notes your GP may have.

 

For more details via the NKF website click here.

 

ORGAN DONATION VIDEO

 

A group of British Asian artists have come together to produce a video promoting organ donation. View below.

 

DIALYSIS BIKES AT SHEFFIELD DIALYSIS UNIT

 

SAKA has purchased 2 specialist bikes for patients at Heeley to use whilst dialysing.

These bikes have great benefits for patients. 

Haemodialysis patients generally spend 3-4 hours 3 or 4 times a week on dialysis. This equates to 4-6 weeks per year sitting or lying inactive whilst on dialysis. Physical inactivity can lead to poor physical performance, loss of bone strength, loss of appetite, muscle wasting, hypertension, fatigue and dependence. These complications are augmented in patients with kidney disease, which in itself can lead to muscle wasting and hypertension. As most haemodialysis patients spend a considerable amount of time travelling to and from and in a dialysis unit, they have less opportunity to exercise.

 

 

Exercise in the general population is associated with a number of benefits including:

  • Improved blood pressure control
  • Increased muscle strength
  • Improved mental health and well being
  • Improved physical function and maintenance of independence
  • Improved sleep

 

There are further specific benefits noted in haemodialysis patients including:

  • Improved efficiency of dialysis by increased muscle blood flow enhancing removal of toxins
  • Improved nutrition
  • Delay in end stage cachexia

 

 

 

 

 

 

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