DIALYSIS BIKES AT SHEFFIELD DIALYSIS UNIT
SAKA has purchased 2 specialist bikes for patients at Heeley to use whilst dialysing.
These bikes have great benefits for patients.
Haemodialysis patients generally spend 3-4 hours 3 or 4 times a week on dialysis. This equates to 4-6 weeks per year sitting or lying inactive whilst on dialysis. Physical inactivity can lead to poor physical performance, loss of bone strength, loss of appetite, muscle wasting, hypertension, fatigue and dependence. These complications are augmented in patients with kidney disease, which in itself can lead to muscle wasting and hypertension. As most haemodialysis patients spend a considerable amount of time travelling to and from and in a dialysis unit, they have less opportunity to exercise.
Exercise in the general population is associated with a number of benefits including:
There are further specific benefits noted in haemodialysis patients including:
Public Health England User interviews - £50 voucher incentive
Public Health England (PHE) Digital is conducting research for the redevelopment of the UK National Screening Committee (UK NSC) website and is seeking volunteers to
provide feedback. This will help improve people’s experience using the website to;
look for health screening information, take part in a public consultations, or lobby the government to introduce a new screening programme.
Contact the project’s User Researcher Micol Artom, by emailing
firstname.lastname@example.org , to register your interest or ask any questions.
You can choose a £50 voucher, for Love2Shop, M&S, Amazon or Tesco, to thank
you for your time.
Please note, we will not record names and personal information and will anonymise any feedback you provide. We will group feedback to provide design inspiration and use it solely for this project.
The UK NSC currently makes policy recommendations on screening for: bladder, bowel, breast, cervical, lung, oral, ovarian, prostate, stomach cancer, and 100 other health conditions.
Feedback would be given via 1 hour workshops, conducted either remotely or at a time and location that is convenient.
PHE are seeking feedback from members of the public who have an interest in screening and or health conditions that the UK National Screening Committee makes recommendations for.
Your feedback is very valuable to them and will help them to make improvements to their website to ensure that it is useful and accessible to its users.
Living Donor Event
19 November 2019
The Living Donor Coordinators organised a highly successful evening at Bramall Lane on 19 November to give patients considering a living donor transplant all the information they needed. They were able to listen to and meet recipients of kidneys along with their donors.
The evening included a pie and pea supper and there was the chance to put questions to health care professionals as well as to donors and recipients.
NHS at 70: The Story Of Our Lives is a national programme of work supported by The National Lottery Heritage Fund and led by The University of Manchester.
Stories are being recorded for a Digital Archive, and they are looking for people to share their own stories, including experiences of dialysis and renal transplantation.
They are particularly interested in the following areas:
- early experiences of home dialysis in the 1960s and 1970s
- experiences of transplantation
- issues around organ donation
- campaigning and activism to improve renal provision in the late 1970s/early 1980s
- lobbying to improve renal provision and the creation of a NSF
For more details visit the website : nhs70.org.uk
The SAKA Annual General Meeting was held on Monday 30 September. Thank you to the loyal supporters who turned out on a wet evening.
We heard from Dr. Bisher Kawar, recently appointed as Clinical Director of Renal Services, who gave us an update on the Department. He explained that some of the dialysis facilities are due to be upgraded, and that they will be looking for patient input into ideas for future improvements.
Dr. Will MacKane spoke about an initiative called "Getting it Right First Time" (GIRFT), which compares best practice amongst renal departments throughout the country and enables units to help each other in delivering the best service possible to patients.
Mr. Steve Dilks from RPG Financial spoke about his management of the SAKA investments.
There followed the routine business, including a report on the National Kidney Federation.
SAKA Chair, David Marshall, spoke about the work of the charity and outlined our plans for the future, including changing our charitable status to become a CIO (Charitable Incorporated Organisation). This will extend the scope of what we are able to do for renal patients.
Phil Beattie, SAKA Treasurer, reported that the finances were in a healthy state and thanked everyone who had supported the charity over the year by regular and one off donations, including those who had chosen to remember loved ones in this way. He also thanked all volunteers who had helped sell Christmas cards and said a special thank you to Andrew Raftery for raising money through his talks to various groups around the city.
Officers and Committee Members were elected as follows:
Chair: David Marshall
Vice Chair: Ken Tupling
Secretary: Peter Joynson
Treasurer: Phil Beattie
Membership Secretary: Glynis Beattie
Committee Members: Adam Greenway, Darren Lath, Kerry Radford, Andrew Raftery
An Open Forum discussion highlighted discontent over the new appointment system. Instead of arranging your next appointment when leaving the Outpatients Deprtment you now have to wait to be contacted.
There were also questions on the supply of medications if and when Brexit happens.
FREE Information and Advice Sessions
SAKA is funding Information and Advice Sessions at the Renal Unit at the Northern General Hospital. Any renal patient can make use of this service, which covers benefits advice, housing issues, consumer issues, non-residential care, money matters, legal issues etc.
Sessions are also held at Heeley Satellite Unit.
The sessions are run on our behalf by Age UK, but are open to patients of any age.
So far we have had a lot of success in helping people claim benefits, which they may not otherwise have realised they were entitled to.
For further details or to book an appointment:
Phone 0114 2502850 or
As you may know SAKA used to own a holiday caravan on the east coast, but, due to its declining use, we took the decision to sell it.
However, the North East Kidney Patients Association now have a caravan for hire at Cayton Bay Holiday Park near Scarborough.
Details: 2 bedroom, 6 berth, wheelchair friendly, fully equipped , hire fee includes free entertainment passes
Dialysis is available at Scarborough Hospital (4 miles away) and Bridlington Dialysis Unit (6 miles away)
For more details / bookings please contact Victoria Harrison: email@example.com
Phone / text : 07985 781364
To download flyer with full details CLICK HERE
SAKA was delighted to be chosen as one of the charities to benefit from the 2019 Music in the Gardens. This is an annual event in Sheffield's Botanical Gardens organised by local Rotary Clubs. Six volunteers from SAKA sold programmes and held a bucket collection on the evening of Sunday 7 July when the crowd was entertained by Unite the Union Brass Band and Sheffield Philharmonic Orchestra, followed by a firework display. So far over £700 has been raised, with more to come later in the year.
SHEFFIELD CELEBRATES 50 YEARS OF KIDNEY TRANSPLANTATION
On 28 September 2018 a celebration was held at Kenwood Hall to mark 50 years of kidney transplantation in Sheffield.
The PITHIA trial is a new clinical trial being rolled out across all transplant centres in the UK. The aim is to allow doctors to perform higher numbers of good quality transplants using kidneys from older donors.
3rd PKD Patient Research
The 3rd PKD Patient Research Information Day was held on Saturday,14th July 2018 at The Circle, Rockingham Lane, Sheffield.
The event was chaired by nephrologist Prof. Albert Ong and was attended by nearly forty patients and guests.
Patients at the event were given presentations from experts on new research trials, patient experience of new treatments, managing pain and improvement of imaging techniques.
There were also opportunities to view posters from recent research studies, question the experts and to mingle and share experiences with each other.
The feedback from the day was very positive and there are plans for similar events in the future.
“An excellent informative day, thank you”
“I am reasonably new to PKD but am very impressed and appreciative of the care and concern (and friendliness) of the Sheffield Team, thank you”
“This event is invaluable to me as a patient. It is so helpful to hear the advances in research as it helps me to feel more positive, empowered and knowledgeable about the disease”
For further information email: firstname.lastname@example.org