FEEDBACK ON WARD INFORMATION BOARDS
Sheffield Teaching Hospitals are asking people to fill in a questionnaire to give their opinions on the information boards at the entrances to wards. They want to make sure that the information given is useful to patients and visitors. If you have been an inpatient or a visitor please complete this survey, and please pass on the details to anyone else you know.
One of the questions asks which of three types of information board you prefer. Below are the three examples to choose from.
Researchers at the University of Exeter are looking for family members, partners, or friends of people living with kidney conditions to participate in an interview.
Interviews will ask you about your needs, experiences receiving support, and views about online emotional support programmes.
The results of this project will be used to understand more about what it is like to be a family member, partner, or friend of someone living with a kidney condition, and to inform the development of an emotional support programme for others like you.
Contact Chelsea at email@example.com if you want to learn more.
World Kidney Day 2022
To mark World Kidney Day SAKA joined forces with Sheffield Teaching Hospitals NHS Foundation Trust to hold an online event with presentations by a range of health care professionals. Click below to watch the video of this event.
Immunosuppressed patients can book
5th Jab (Spring Booster)
3 months after previous booster
To book online visit: Book or manage a coronavirus (COVID-19) vaccination - NHS (www.nhs.uk)
Coronavirus : Latest guidance for kidney patients
You can check on the latest updates via the Kidney Care website:
For up to date information on how and where to get tests in Sheffield visit the Sheffield City Council website:
And for informtion about vaccinations: Coronavirus - Getting vaccinated (sheffield.gov.uk)
To access the latest advice from the Government visit:
Dialysis Away From Base Survey
Travel for dialysis patients is a real challenge - arranging dialysis away from base can be daunting, difficult and time consuming. As a result, travel for most patients is very limited. As the government loosens Covid restrictions, most of the population will regain their freedom to roam. But for many dialysis patients, unless changes are made, there is a risk that life may continue to feel like a permanent lockdown.
Dialysis Away is working with the NHS and kidney patient organisations to develop solutions for improved freedom for all dialysis patients.
They would like to hear from patients about their experiences with arranging dialysis away from base and have launched a survey, which is very short and only takes a few minutes to complete. The survey findings will be used to ensure the attention of policy makers on dialysis patient freedom.
If you would like to take part in this survey, here is the link : https://tinyurl.com/Dialysis-Travel-Survey
For more details about Dialysis Away visit their website: https://dialysisaway.com
All at SAKA were deeply saddened to hear that two valued members of the kidney community had passed away in early December. May they both rest in peace.
John served as a Trustee in the early days of SAKA as well as being active in NKF.
Darren was a transplant patient and a Trustee of SAKA. He was a popular and loyal member of the Sheffield Adult Transplant Games Team and competed regularly in the Games over several years. Many people will remember him as the person who organised bookings for the seaside caravans which SAKA used to own. He was first diagnosed with cancer a few months ago but then given the all clear.Tragically he was then diagnosed with another tumour and lost his battle after a short illness.
An Addenbrooke’s trial is rolling out to hospitals across the UK to see if a drug used to treat tapeworm can give high-risk kidney patients extra protection against Covid-19.
The National Kidney Federation is running a national campaign to encourage dialysis patients to consider dialysing at home rather than in a hospital. During the Covid 19 pandemic statistics emerged to show that home dialysis patients were at a lower risk of contracting the virus.
To help people make the transition NKF have launched a Peer Support service which offers short term practical and emotional support. If you would like to be put in touch with someone who has experience of home dialysis and who can talk to you about the process and share experiences, do get in touch by calling the NKF helpline: 0800 169 09 36 (9 am. - 5 pm, Monday to Friday)
or email firstname.lastname@example.org
New NICE Guidelines
NICE (National Institute for Health and Care Excellence) have published new guidelines for the care and treatment of patients with chronic kidney disease.
A joint statement from professional, patient and research kidney organisations, including NKF, particularly welcomes the changes relating to measuring the kidney function of ethnic minorities.
Drive Through Blood Test Centre
The drive through blood testing facility has moved again (as from 5 July) and is now located at City Parkway, Parkway Avenue, Sheffield, S9 4WA.
(Use the turn off for the Pentagon car showroom)
SAKA has purchased a supply of Puzzle Books to be given to dialysis patients.
We know it is beneficial to keep our brains active and these puzzles will help to pass your time during your dialysis sessions.
If you would like one and have not been offered a copy, please ask a member of staff.
We would welcome any feedback on these books, or if you have any other ideas or suggestions about what else we could do to help:
please email: email@example.com
SHARING GP DATA
From 1 September 2021 GP Practices across the UK will begin sharing patient data. The original start date was to be 5 July, but this has now been postponed.
The new General Practice Data for Planning and Research (GPDPR) aims to reduce the burden on GP practices, allowing doctors and other staff to focus on patient care.
The NHS will share details about diagnoses, symptoms, medications, immunisations as well as your gender and ethnicity. They will not share your name and address or any written notes your GP may have.
ORGAN DONATION VIDEO
A group of British Asian artists have come together to produce a video promoting organ donation. View below.
DIALYSIS BIKES AT SHEFFIELD DIALYSIS UNIT
SAKA has purchased 2 specialist bikes for patients at Heeley to use whilst dialysing.
These bikes have great benefits for patients.
Haemodialysis patients generally spend 3-4 hours 3 or 4 times a week on dialysis. This equates to 4-6 weeks per year sitting or lying inactive whilst on dialysis. Physical inactivity can lead to poor physical performance, loss of bone strength, loss of appetite, muscle wasting, hypertension, fatigue and dependence. These complications are augmented in patients with kidney disease, which in itself can lead to muscle wasting and hypertension. As most haemodialysis patients spend a considerable amount of time travelling to and from and in a dialysis unit, they have less opportunity to exercise.
Exercise in the general population is associated with a number of benefits including:
There are further specific benefits noted in haemodialysis patients including: